A2019SM-lam

First Virtual Coffee & Conversation

Now that we are almost done wrapping up Move For Melanoma, we would like to start virtual ‘Coffee & Conversation’ meetings in place of our previous in-person gatherings.  The first meeting will be Tuesday, October 6th @7pm.  We will aim to stick with our usual date being the 1st Tuesday of every month.  Please email us (asmelanoma@gmail.com) to let us know if you will be attending, in which case you will receive a reply with a link for the meeting.  There is no formal agenda as we just want to touch base with everyone and provide some updates on what our Society has been working on.  We welcome any discussion topics/questions that you may bring forward.  Hope to see you then!

 

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Reminder: Move For Melanoma THIS WEEKEND!

Hi all!

Just a reminder that Move For Melanoma is taking place this weekend (Sept 26-27)!!  Registration for our group walk is still open and we have not reached our cap yet.  Here is the link if you still want to sign up: https://forms.gle/94JrJEgpNUx6SMm86.  We would love to see your faces but we also completely understand if you do not feel comfortable attending.  Please follow us on Facebook, Instagram and Twitter to see pictures of the event, and also don’t forget to email us your pictures or tag us in them.  There will be an Opening Ceremony on Friday, courtesy of Save Your Skin, which will be posted on our social media platforms.  Thanks again for your support, and have a fabulous time MOVING FOR MELANOMA!

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Move For Melanoma Walk

Hi all!  We have decided to proceed with doing a small group event for Move For Melanoma.  It will be a walk at Victoria Park on Sunday, September 27th, commencing at 10:00am and wrapping up around noon.  Please fill out our registration form (https://forms.gle/94JrJEgpNUx6SMm86) if you wish to attend.  We will be capping the registration at 40 people in light of COVID, so sign up soon if you want to be a part of the event.

If you cannot come to the walk, we encourage you to do an activity at home in the spirit of moving for melanoma awareness.  This can be any activity you want – dancing, playing with your kids, lifting weights, vacuuming.  Okay, not actually vacuuming, but you get the idea!  We would really appreciate if you take some pictures while doing your activity, and either send them to us (asmelanoma@gmail.com) or tag us on social media (Instagram & Twitter @ab_melanoma; Facebook @AB Melanoma).

If you have any questions, as always, reach out!

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CSPA COVID-19 Survey

Hi all!

On behalf of our friends at Canadian Skin Patient Alliance, please consider completing this survey regarding the impact of COVID-19 on access to dermatology care.  Here is the link: CSPA Survey

Thank you & stay well!

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August Update

We have been putting lots of energy into our upcoming fundraiser, Move for Melanoma!  We plan to start coffee meetings again very soon (virtual, of course).  Stay tuned, and please reach out if you would like to be featured at one of our meetings!

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Stay Tuned for Future Virtual Social Events!

Since we can not meet for coffee in person, we will be planning some virtual social events. The next meeting information will be up soon!

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Lisa Brent – Co-Leader

As a child, I was hardly ever in the sun. Then came my teen years and the societal image of the tanned blue-eyed blonde seemed like it was the thing to do. By Grade 12, my fair skinned was brown from using tanning beds and I remembered someone commented on how healthy I looked. Using the tanning beds was the only way I could get a tan.

I was always a “moley” person and knew I needed to see a Dermatologist but never understood why. I would go for my annual checks and never thought twice when Dermatologists removed a mole. I can’t understand why I never even questioned these procedures. I was young and was must of thought I was invincible. I was not aware of the dangers of tanning.

It was my first-year teaching and my daughter was in kindergarten; I was 27. I saw a new Dermatologist, he gave me the once over and I pointed to a mole on my arm that was scabbing and bleeding at times. He removed it promptly. I got a phone call at work from a different Dermatologist, a melanoma specialist, who told me I had melanoma and that I needed to come in for various tests and a wide excision. My appointment was booked for the last day of school; something as a first-year teacher I looked forward to celebrating with students. I told him I couldn’t miss the last day and that HE didn’t get it. He was right that it was ME who didn’t get it. He then used the words skin cancer. Now I got it. A wide excision, lymph node removal and five years of surveillance is what was in store for me. My melanoma was 0.99m and no signs of metastasis. I will always be thankful for the guidance and caring nature of Dr. Thomas Salopek. I joined the Alberta Society of Melanoma and met many people who had experienced what I was going through. I was not alone. I will always remember the wonderful people I met along this journey including Tanny Nadon and Mary Johnston and have so much gratitude to the Alberta Society of Melanoma for having a patient support network.

Fast forward a decade and came a new chapter in my life. The birth of another daughter and son. I continued to see Dermatologists but more frequently. In 2014 I was blessed to come across Dr. Melody Cheung Lee. She met me for the first time and was so caring and empathetic. She saw a mole on my upper thigh and removed it. It came back as a melanoma however caught very early. I will always be thankful for her keen eye and gentle disposition. In 2017, I had 4 additional melanomas removed. In total, I have had 6 melanomas and multiple mole removals.

I am an advocate for myself and for others. I have experienced the wide range of emotions that come with being diagnosed with cancer and have faced misconceptions such as “it’s just skin cancer.” I try to make the most out of each day and live fearlessly.

I continue to teach full-time and enjoy my family. Volunteering for the Alberta Society of Melanoma to educate the public and see change in policies is a goal of mine. Working as a team and collaborating are at the heart of who I am, and I believe that we all have a voice. No matter where we are on this journey, it is our journey. Patient support and advocacy are at the foundation of this society which I hope to develop further. I am excited to be sharing this opportunity with Al Nak and members of the ASM. We are survivors.

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Win4Skin

Win4Skin

 

Win4Skin is an associated organization dedicated to raising funds for skin cancer research by a banquet and a golf tournament.

The 2018 banquet was held on Saturday June 2 at
the Blatchford Field Air Hangar at Fort Edmonton Park. The event included a buffet dinner, speeches from Win4Skin community members, a fantastic live and silent auction and a dance to wrap up the
night.  For more information on Win4Skin check the website at 
https://win4skin.com/banquet/

Below is a video about the organization with a testimonial by our own Lisa Brent.

 

 

Dr. D. W. C. (Bill) Johnston

 

We regret to inform you that Dr. Bill Johnston died
February 19, 2018.

Husband to Mary Johnston, he passed away suddenly at the U of A Hospital.
He created the Mary Johnston Chair in Melanoma Research in memory of his first
wife.
In lieu of flowers, please join him in supporting this cause by donating in his
name.
Check the link at http://albertacancer.ca/billjohnston for an obituary and donation information.
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Alberta Skin Cancer Prevention Framework

The Alberta Society of Melanoma has been invited to participate in a new project hosted by Alberta Health Services. Representatives from ASM will be meeting on September 7, 2018 with other representatives involved in preventing skin cancer. More details to follow.

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